How many rare diseases have been identified?
3,000
7,000
10,000
For people who have a rare disease, how many years, on average, did they wait to get an accurate diagnosis?
Six years
Four years
Two years
How does the United States define a rare disease?
It affects fewer than 25,000 people.
It affects fewer than 100,000 people.
It affects fewer than 200,000 people.
How does the European Union define a rare disease?
It affects fewer than one in 200 people.
It affects fewer than one in 2,000 people.
It affects fewer than one in 20,000 people.
In the world, how many people have a rare disease?
An estimated 3 million to 4 million
An estimated 30 million to 40 million
An estimated 300 million to 400 million
How many rare diseases have an approved treatment in the United States?
3 percent
5 percent
10 percent
How many treatments for rare diseases have been approved in the U.S. since 1983?
300
500
800+
A 2018 study counted the number of clinical trials in the U.S., Europe and Japan that investigated rare diseases and potential treatments. Out of 28,526 trials, how many were there?
1,500 clinical trials
2,000 clinical trials
5,000 clinical trials
True or false: Newborn screening - testing babies at birth for certain conditions - is an important issue for rare disease advocates.
True
False
True or false? Rare Disease Day is always on February 28.
*
True
False
Rare diseases affect ...
*
Only the person diagnosed
The patient, their families, friends, caregivers and society as a whole
None of the above
